fosun foundation and fosun pharma sponsored shanghai rare disease prevention and treatment foundation
shanghai rare disease prevention and treatment foundation initiated by rare disease branch of shanghai medical association was officially established in shanghai in the morning of oct. 19th. xie lijuan, former vice mayor of shanghai people's government, initiator of shanghai rare disease prevention and treatment foundation; ma qiang, executive vice chairman of shanghai red cross; wu jinglei, deputy party secretary of shanghai health and family planning committee; jia yong, deputy director of shanghai civil affairs bureau; and huang guoying, director of children's hospital of fudan university attended the inaugural ceremony. sponsors of the foundation, staff from shanghai rare disease care home, some patients and their families also attended the ceremony.
shanghai fosun foundation and shanghai fosun pharmaceutical (group) co., ltd (fosun pharma) were the co-sponsors of shanghai rare disease prevention and treatment foundation. wu zhiliang, deputy party secretary of fosun, vice gm of the board and president office, secretary-general of fosun foundation; sun yuebo, vice gm of public affairs of fosun pharma, on behalf of the two units respectively, attended the ceremony.
during the ceremony, jia yong, deputy director of shanghai civil affairs bureau announced the decision on registering shanghai rare disease prevention and treatment foundation. after that, xie lijuan, former vice mayor of shanghai people's government and deputy director jia yong jointly unveiled the foundation, and issued the honorary certificate for the sponsors. wu zhiliang, secretary-general of fosun foundation received the certificate.
at the end of the ceremony, xie lijuan, former vice mayor of shanghai addressed the ceremony, expressing her congratulations to the establishment of the foundation, as well as her expectation for the foundation to actively promote rare disease prevention and treatment and improve health.
the establishment of shanghai rare disease prevention and treatment foundation is expected to facilitate basic medical insurance system of rare diseases and enhance diagnosis level of the medical staff.
as the starting fund of shanghai rare disease prevention and treatment foundation, the rmb 0.5 million jointly sponsored by shanghai fosun foundation and fosun pharma gives great support to the establishment of the foundation to constantly promote human health and actively help patients with rare diseases. meanwhile, the two units will closely follow up the subsequent progress of the foundation; leverage existing platforms and resources to improve expertise and participate in future health activities of rare diseases, thus make ongoing contribution to the improvement of human health.
as a platform and portal for fosun pharma to perform social responsibilities, shanghai fosun foundation has been actively engaged in public welfare activities since its inception in 2012, ranging from cultural heritage to poverty-relief and helping the disabled. it is learnt that shanghai fosun foundation has invested accumulated rmb 30 million to conduct public welfare activities in 2014.
as a leading pharmaceutical group in china, fosun pharma always performs its social responsibilities with promoting human health as its mission. since 1998, fosun pharma has participated in and organized a large number of public welfare activities covering education and research, environment protection, healthcare and social needs and culture fields in multiple countries and regions. currently, fosun pharma has formed an optimized public welfare system - the future star commonweal program, which performs csr and gives back to the society by supporting education, funding research, providing community medical service, rescuing sick orphans, and poverty-relief and disaster aid.